For most people, a cancer diagnosis is the first step down an unfamiliar path. To help them find their way through the system more easily, the BC Cancer Agency, in cooperation with the Canadian Breast Cancer Foundation and regional health authorities, is looking for ways to help cancer patients navigate the system.

Faced with a number of treatment and support options, it can be difficult for patients to find their way through the complex maze of cancer care. In rural and isolated communities in particular, patients may find a lack of communication between cancer centres, community-based services, and family physicians.

A possible solution is "patient navigation," a way to help cancer patients to access services and resources, and to improve continuity and coordination of care. Linking patients quickly with services and supports can help both their physical health and quality of life.

A navigator, explains Richard Doll, leader of the BC Cancer Agency's rehabilitation program, is someone who is dedicated to helping patients negotiate their way through the cancer care system.

"It's a person who patients can turn to for advice, answers, and information about programs and services," Doll says. "As well, the navigator helps to create important linkages for the patient with existing services and resources in promoting seamless care."

While existing navigator programs look promising, each are different, and there isn't a consistent method of evaluating each one for its strengths and weaknesses. Over the next few months, a BC Cancer Agency team, with researchers from the University of B.C. and health professionals from the Vancouver Island Health Authority and the Interior Health Authority (Kootenay Boundary Service Area), will be researching the strengths of navigator programs in B.C. and across Canada. This information can then be used to develop a provincial approach for navigator in B.C.

A future navigator program would support regional health authorities, local hospitals, family doctors, and support groups, and provide better communication between those caregivers who support cancer patients. Ideally, a navigator would be available to answer questions, provide information, and be a sympathetic listener who can help to reduce a patient's distress.

While waiting for the result of a biopsy, Louise Muir realized that she had many questions, and may be facing challenges. She was referred to the Breast Health Centre in Victoria, a program the Agency is studying to develop its own navigator model. Even before her diagnosis, Louise discovered that the Centre provided a wealth of information and support. It put her mind at ease until she was able to see her doctor and receive her diagnosis, and especially during those times she was overwhelmed.

"It really gave me some peace of mind, knowing there was someone I could call who would have the answers," says Muir. " Throughout my treatment, the Breast Health Centre was there to provide additional information regarding treatments, expected time lines, and clarification of treatment options."

When patients receive surgery in a hospital as their first cancer treatment – which is the case for many breast cancers – they don't always realize that the BC Cancer Agency is available to provide them with support services and follow-up treatment, explains Cathy Parker, case manager with the Breast Health Centre.

"It's very helpful for patients to have someone within the system offering guidance," explains Parker. "They are given so much information so quickly. Having a cancer diagnosis is like signing up for a course you never wanted to take, and now you have to get an 'A' in."

Katie Hill, in her role as the director of community care, works daily with her team of home care nurses and long term care case managers to understand patient needs and provide supportive care. The investigation team is drawing on her team's experience to help develop a model for all cancer patients.

"In our region, the biggest city has 10,000 people and we are separated by three sets of mountains," Hill explains. "There are some real challenges for people to find resources. In this area, the navigator will help clients to find resources, help develop local resources, and help people take charge of their own cancer care process."

Spending time with a navigator – who can provide support in dealing with the shock of a diagnosis and identifying the questions and concerns they want to discuss with their physician - allows patients to make the most of their time with physicians, because they are prepared.

"In our recently completed research project, Uncovering the gaps: An inquiry of breast care in British Columbia, both breast cancer patients and practitioners strongly urged us to help find a way to assist breast cancer patients to navigate their way through the healthcare system," said Jan Engemoen, executive director, BC/Yukon Chapter of the Canadian Breast Cancer Foundation. "So as an important part of our agenda for breast cancer in BC, the Canadian Breast Cancer Foundation is committed to closing this navigation gap and this is one of many ways we are tackling the issue."

Funding for this project is being provided by the BC Cancer Agency, The Canadian Breast Cancer Initiative, the Canadian Strategy for Cancer Control, the Canadian Breast Cancer Foundation, and the BC Satellite Research Centre.The BC Cancer Agency, a part of the Provincial Health Services Authority, is committed to reducing the incidence of cancer, reducing the mortality from cancer, and improving the quality of life of those living with cancer. It provides a comprehensive cancer control program for the people of British Columbia by working with community partners to deliver a range of oncology services, including prevention, early detection, diagnosis and treatment, research, education, supportive care, rehabilitation and palliative care. The BC Cancer Research Centre conducts research into the causes and cures for cancer.

For more information, please contact:
Nicole Adams
Public Relations Officer
BC Cancer Agency
Ph: (604) 877-6272
nadams@bccancer.bc.ca