We engage in several types of activity to collaborate with patients and families.
We collaborate with patients and families in three ways:
- in partnership
- by getting input
- through co-design
We engage patients and their families in day-to-day clinical care. Some examples are:
- Patient Reporting Information and Symptom Management (PRISM). Results from this intake questionnaire are reviewed by staff and physicians with patients and families to understand preferences, values and needs.
- Care Planning Huddles. Huddles with patients, families and care providers ensure that specific information about the patient and family are shared with the rest of the team.
We collect input from patients and families about existing processes or proposed changes to the organization. Some examples are:
- Ambulatory Oncology Patient Satisfaction Survey. Surveys of outpatient oncology patients in BC in 2005/06 and in 2012/13 measured six dimensions of patient-centred care: respect for patient preferences; access to care; physical comfort; coordination and continuity; information, communication and education; and emotional support.
- Patient Satisfaction Survey: Radiation Therapy. Since 1999 BC Cancer Agency has used patient satisfaction surveys to collect feedback on radiation therapy services to enhance patient care.
Care teams, patients, and families work in collaboration to plan, design or improve services. Some examples are:
- Neuro-oncology Program Patient and Family Advisory Council. A group of nine patients and family members advise on ideas for research, participate in research, write articles for newsletters and co-present at events. The group initiated an award for significant contributions to brain care and contributed to the design of an art therapy group.
- Emotional Support Campaign. Patients and families co-designed the BC Cancer Agency marketing campaign promoting emotional support resources for patients and families. Watch the video for our project "Get Your Province Together! BC Cancer Agency Emotional Support Transformation."