This research group seeks patient experiences and knowledge and uses patients' input as a platform for subsequent plans/programs. The overall aim of the theme is to identify the information and support people with cancer need, and develop strategies to address those needs that can improve patients' quality of life and well being.
The theme initially focuses on the needs of people with colorectal cancers. As health care providers, we have heard patients' stories about frustrations with the information or lack of information received by those people with colorectal cancer during their care, treatment and beyond. Although information seeking and receiving has been shown to be an integral part of cancer care, a disparity exists between cancer patients' and health care professionals' perceptions of the type and amount of information patients want or need (Degner LF et al, 1998).
Projects in the area of follow up care and lifestyle behaviours are currently underway.