Professional Framework

Patient engagement and experience at BC Cancer are guided by PHSA's Patient and Family Engagement Framework.

​​The framework includes:

  • Key concepts in patient and family engagement
  • A customized Spectrum of Engagement based on leading practices and adapted for PHSA
  • Steps, tools and resources to helps teams plan and deliver meaningful patient and family engagement across a variety of settings

Spectrum of Engagement

The Spectrum of Engagement includes examples of how patients and families can participate in decisions and initiatives. It is adapted from the International Association for Public Participation’s IAP2 Spectrum of Public Participation, a framework used around the world to define the public’s role in engagement and decision-making processes.

Inform

Share relevant, timely information with patients and families.

Examples:​

  • Fact sheets
  • Websites
  • Social media posts
  • Email updates
  • Newsletters
  • Open houses

Gather

Gather feedback, perspectives and experiences from patients and families.

Examples:

  • One-on-one interviews
  • Focus groups
  • Surveys
  • Public meetings
  • Storytelling activities

Involve

Engage patients and families in discussions to better understand and consider their perspectives and insights.

Examples:

  • Workshops
  • Working groups
  • World cafés
  • Document reviews
  • Survey development
  • Hiring interview panels

Collaborate

Partner with patients and families to achieve a shared goal.

Examples:

  • Advisory committees
  • Steering committees
  • Consensus-building activities
  • Patient journey mapping
  • Presentations

Lead

Recognize and support patients and families as leaders with final decision-making authority.

Examples:

  • Co-design initiatives
  • Delegated decision-making
  • Leading education sessions for staff or leaders
  • Serving as board members
To learn more, visit the PHSA Patient and Family Engagement Framework. ​