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Get Involved as a Patient or Family Partner


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A patient or family partner is someone who has experience with cancer care as a patient, caregiver, family member or supporter. Our patient and family partners contribute to people-centred care by sharing their experiences in projects and on committees. 

Pathway to becoming a patient or family partner



Engagements

Background & Purpose

Have you undergone pancreatic cancer screening? Or, have you had pancreatic cancer? Or, do you have a family history of pancreatic cancer?

The Hereditary Cancer Program at BC Cancer is undertaking a research project to understand patient perspectives of pancreatic cancer surveillance. The project plans to send people a survey to understand who is having screening, how frequently and the degree to which people may be worried about screening. The project will also undertake interviews with participants.

As a patient or family partner on this project, you will have a chance to provide your input to the interview guide and approach that will be used with study participants.


Level of Engagement

Consult: Partners provide feedback ad-hoc.


Eligibility

  1. You are a patient or family partner.
  2. You have gone through pancreatic cancer screening yourself, or you have had pancreatic cancer, or you have a family history of pancreatic cancer.

Location: One virtual meeting


Date: Meeting will be scheduled in June or July


Time Commitment: Up to 2 hours


Closing date: Tuesday, June 18

Background & Purpose

Have you undergone brachytherapy before or supported someone going through brachytherapy? Are you interested in shaping a more patient-centred approach to this type of treatment?

A team at the BC Cancer – Kelowna Centre is undertaking a research project to develop a trauma informed approach to brachytherapy. They are interested in hearing from patients and caregivers about their experience through a story-telling approach. This information will be used to create recommendations for the Kelowna Centre around how to provide brachytherapy in a more trauma informed way.

As a patient or family partner on this project, you will join the research team and provide your input on various parts of the project (e.g. the consent and invitation to participate, interview guide, interpreting the research findings). 


Level of Engagement

Collaborate: Partners collaborate with the project team in decision-making throughout the engagement


Eligibility

  1. You are a patient or family partner.
  2. You or your loved one has undergone at least one round of brachytherapy before (ideally at the Kelowna Centre, but this is not a requirement)

Location: Virtual or in-person (dependent on your preference)


Date: August 2024-August 2025 (you can participate for a shorter period of time)


Time Commitment: Up to 2 hours per month


Compensation: Compensation will be provided. 


Closing Date: Tuesday, June 18

Background & Purpose

Do you have patient or caregiver experience with stomach cancer? Are you interested in helping to create a set of tailored nutritional guidelines that will improve quality of life and lead to better treatment outcomes in stomach cancer?

With funding from the Canadian Cancer Society, a team at Sunnybrook Research Institute is gathering experts with various backgrounds including oncologists, dietitians, gastroenterologists, family doctors, and patient and caregiver partners to discuss and create guidelines for best practices of nutritional care in stomach cancer.

As a patient or family partner in this project, you will you join a panel and be involved with sharing ideas with healthcare providers through rounds of discussion, rating statements according to importance, and the decision-making of guideline statements.

By joining this panel, you are committing your availability to the following dates and times.

  • To complete two online surveys, each lasts for approximately 30 minutes
  • To attend two virtual panel meetings
    • November 1, 2024 14:00-17:00 (EST)
    • December 11, 2024 14:00-17:00 (EST)
  • To attend the My Gut Feeling Annual Conference (virtual) on November 30, 2024.

Level of Engagement

Collaborate: Partners collaborate with the project team in decision-making throughout the engagement.


Eligibility

  1. You are a patient or family partner.
  2. You have experience with stomach cancer. 

Location: Virtual 


Date: November to December 2024


Time Commitment: Up to 10 hours


Compensation: You will be provided a $75 visa gift-card per panel meeting. 


Closing Date: August 30, 2024 

 

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SOURCE: Get Involved as a Patient or Family Partner ( )
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