Background & Purpose

BC Cancer is working to create a strong program for collecting Patient Reported Outcome Measures (PROMs) and Patient Reported Experience Measures (PREMs). These tools help patients share their experiences and outcomes with their health care team. This ensures that patient voices are heard and used to improve care plans, enhance the quality of care, and increase patient satisfaction.

The project team wants to hear from patient and caregiver partners to understand what patients need from a system that collects PROMs and PREMs. This feedback will help choose the right technology and guide the design of the program. Your input is important as BC Cancer works to reduce barriers and inequities in the current system, and to create tools that are easy to use, accessible, and inclusive.

As a patient or caregiver partner, you will join a virtual 1.5-hour focus group to share your thoughts and feedback. The session will be run by staff from BC Cancer and the Provincial Virtual Health team, who are working on the program together.

Level of Engagemen

Consult: Partners provide feedback ad-hoc

Eligibility

• Patient or family partner
• Not required, but if you have experience filling out patient reported experience or outcome surveys as part of your care at BC Cancer, that would be helpful.

Background & Purpose

Do you have breast cancer experience? Have you used supportive care services before? Do you enjoy public speaking? A team at the University of British Columbia is delivering workshops, known as an ECHO, to healthcare providers to increase their knowledge and competence delivering breast cancer supportive care. The ECHO model breaks down the walls between specialty and primary care. It links expert specialist teams at an academic 'hub' with health care professionals in local communities – the 'spokes' of the model.

As a patient or family partner you will join the ECHO workshops to share feedback and address questions relevant to the education topic and/or the case study. The workshops are 60-minutes, will be delivered virtually from October 2024 to June 2025 and will include 20 to 30 participants. Ideally you will be able to attend 2 to 3 workshops. Topics for the workshops include: managing emotions, sexual function, managing pain, managing life roles, exercise considerations, nutrition considerations, managing fatigue and supporting palliative patients.

Before joining a workshop, the ECHO team will meet with you to provide a brief overview of the topic (what will be discussed), the case study (what it will address) as well as a summary of the ECHO participants (who will be there).  This will be an opportunity to address any questions and review the roles of the patient and  family partner during the session.

Level of Engagement

Consult: Partners provide feedback ad-hoc

Eligibility

• Patient or family partner with breast cancer experience
• Experience using supportive care services (e.g. counselling, nutrition, pain management)
  

• Comfortable with public speaking
  

Location: Virtual workshops

Date: October 2024 to June 2025

Time Commitment: Up to 5 hours. 

Compensation: Honorarium will be provided.

Closing date:  Monday, September 23rd