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Request Registry Data

Here are the instructions and forms for requesting BC Cancer data or a SEER statistics software package, as well as information on using PopData.

BC Cancer data requests

1Download the forms

Download the DAR forms:

2Review the info on the forms

Carefully review the information on the first page. e.g. data requests for a research purpose must include your research ethics board submission and approval before they can be processed.

3Complete the forms

Fully complete the forms. Insufficient details about your request may result in processing delays.

4Submit the forms & documentation

Submit the data request forms and supporting documents to datareq@bccancer.bc.ca

5Data linkages

For studies requiring linkage of our data holdings to other source(s), an additional Data Linkages form must be completed and submitted. 

Those interested in data linkage projects can also review the information about conducting linked-health data research studies at Population Data BC

Processing times & approvals

Data requests are placed in a queue based on date of receipt.

Approval times and release of data will vary widely depending on the complexity of the request. 

You will be contacted about your request if any clarifications are required. Requests should receive a confirmation email within 2-3 business days with information about next steps.

Due to cancer data collection processes and procedures, data released from the Registry is generally about 18 months behind real-time. For example, data requests submitted in the 2017 calendar year will likely have access to new cancer diagnoses up to the end of 2015. BC Cancer generally releases BC Cancer statistics with a similar time lag. 

Questions

Any questions related to data requests and the data request process may be directed to the Cancer Surveillance & Outcomes Unit at datareq@bccancer.bc.ca.

SEER statistics software requests

SEER*Stat is a free statistical software created by the National Cancer Institute (NCI) in the United States. 

The software is designed to analyze cancer registry data. SEER*Stat software can generate several different statistical summaries useful to understanding the impact of cancer in the population including numbers of new cancer cases as well as crude and age-adjusted cancer incidence rates. 

The BC Cancer Registry SEER*Stat package contains de-identified data on new cases of cancer diagnosed in BC residents. It can be analyzed by the user to generate their own custom statistical summaries. 

To request the BC Cancer Registry SEER*Stat package, please complete the SEER*Stat release form and submit it todatareq@bccancer.bc.ca.

Population Data BC

The BC Cancer Registry contributes data to Population Data BC (PopData) to facilitate population health research and enable convenient data linkage of Registry data with health and other information captured across the province. 

Researchers wanting to access cancer data facilitated through PopData may use the PopData website. 

Information, forms and a checklist of available BC Cancer Registry data is on the BC Cancer Registry Data page on PopData.

BC Cancer data confidentiality undertaking

When your project is approved, you and your project team members will be asked to sign a confidentiality undertaking similar to this document. Applicants should review this document to ensure they can meet these obligations.

SOURCE: Request Registry Data ( )
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